About one third of people with epilepsy experience comorbid depression. UPLIFT (Using Practice and Learning to Increase Favorable Thoughts) uses mindfulness-based cognitive behavioural therapy (CBT) principles to treat depression in people with epilepsy. The EpUp study aimed to examine outcomes of UPLIFT versus EpINFO, an epilepsy information and self-management program. The effects of these distance-delivery, group intervention programs were studied in adults with epilepsy and self-reported depressive symptoms.
Data is organized based on clinical form, participant cohort (UPLIFT and EpINFO), and timepoint. 88 packages are available that include data for 66 participants across 14 clinical forms, and 6 timepoints. Data is available in CSV format with accompanying README's and data dictionaries.
To gain access to Brain-CODE Open Data Release data, Study Investigators will need to sign up for an account at www.braincode.ca, agree to the Platform Terms of Use Agreement, and submit a request through the Data Release Dashboard (https://www.braincode.ca/content/dashboard#EpUp_Data_Release). Learn more about Brain-CODE data sharing and governance via the Brain-CODE Governance Policy (https://braininstitute.ca/docs/Brain-CODE-Governance-Policy-version-FINAL.pdf).
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Hum, K. M., Chan, C. J., Gane, J., Conway, L., McAndrews, M. P., & Smith, M. L. (2019). Do distance-delivery group interventions improve depression in people with epilepsy?. Epilepsy & behavior : E&B, 98(Pt A), 153-160. https://doi.org/10.1016/j.yebeh.2019.06.037