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enhancements to the record editor/creator for manually entering medical history #60

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AnalogJ opened this issue Feb 6, 2023 · 5 comments

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@AnalogJ
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AnalogJ commented Feb 6, 2023

as discussed in FHIR Zulip

We've received constant feedback that users would also like the ability to create records themselves:

  • their institution may not be supported by Fasten
  • their institution may be international (and not have a patient-accessible portal)
  • they have old records that no longer exist
  • they have relevant medical data that has never been tracked by an institution
  • etc.

Since our system already uses and understands FHIR documents, we should store patient manually-created documents in the same format, however FHIR editors seem complicated, requiring patients to understand the FHIR spec.


Some ideas for how medical history can be "manually" ingested by Fasten

  • a UI library that generates "simple" forms for each (or multiple) FHIR resource type?
  • using the FHIR Questionnaire resource/wizard for prompting users for their medical information?
  • an ML based system to parse free-text into records.
  • a simple DSL (similar to FSH) that can generate FHIR records.
  • a question/answer style chatbot for generating records
@AnalogJ
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AnalogJ commented Feb 6, 2023

The "Patient Health Record" form in https://lhcforms.nlm.nih.gov/lhcforms is almost exactly what we want. It's a bit dense, but very functional and intuitive.

Autocomplete based on SNOMED/LOINC records would be ideal.

@AnalogJ AnalogJ changed the title record editor/creator for manually entering medical history enhancements to the record editor/creator for manually entering medical history Apr 18, 2023
@AnalogJ
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AnalogJ commented Apr 18, 2023

Awesome, would love to see this manual entry be two tiered, with an encounter entry form that allows for selecting previously entered providers / locations / diagnoses / medications while also allowing for the addition of visit type, chief complaint, vitals, progress notes, patient instructions, etc.

https://www.reddit.com/r/selfhosted/comments/12pcna3/fasten_health_open_source_selfhosted_personal/jgol6lm/

@phobrla
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phobrla commented Apr 18, 2023

Awesome, would love to see this manual entry be two tiered, with an encounter entry form that allows for selecting previously entered providers / locations / diagnoses / medications while also allowing for the addition of visit type, chief complaint, vitals, progress notes, patient instructions, etc.

https://www.reddit.com/r/selfhosted/comments/12pcna3/fasten_health_open_source_selfhosted_personal/jgol6lm/

The FHIR Form Builder's JSON output function may be able to be used with Excel and Regular Expressions to quickly wireframe an encounter addition form.

@phobrla
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phobrla commented Apr 18, 2023

Autocomplete based on SNOMED/LOINC records would be ideal.

https://jsfiddle.net/lforms/weaqqbg4/29/ is a demo of this; source is at https://github.com/lhncbc/lforms

@AnalogJ
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AnalogJ commented Apr 18, 2023

@phobrla "Autocomplete based on SNOMED/LOINC records would be ideal." is already in place. Is that feature not working for you?

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